Come and join us for a fun and relaxed evening of Giffnock Hold’em and
help us raise money for a wonderful charity Duchenne UK Action Duchenne Muscular Dystrophy
We will be playing two games with all rules explained at the start of the night and we will have volunteers at hand to keep you right.
This is a fun night and we welcome all levels, from complete beginners to regular poker players. We will be using Giffnock dollars as our currency and buy-ins will be limited to a maximum of three.
Order of the night will be:
| 7pm | Arrival - get your Giffnock dollars and brush up on the rules |
| 7.30pm | Shuffle up & deal - Game 1 |
| 9.30pm | Break for a charity raffle |
| 10pm | Shuffle up & deal - Game 2 |
| 11.45pm | Last orders |
| 12.15am | Carriages |
This is a charity event supporting Duchenne UK and in particular friends of our club affected by this condition. Family have shared their experience and why it is crucial to support this charity:
Many thanks for choosing Michael and Duchenne UK as the charity to benefit from your annual poker night, it’s truly appreciated.
Michael is 5 years old and lives in Giffnock, with his parents Mhairi and Michael, older brother Joe and big sister Eve. As a family we have had a connection with GTSHC for a number of years, both our older children were junior members and we even had Michael’s christening party in the clubhouse as well as other family parties over the years, so to have you think of him means a lot to all of us.
Michael was diagnosed with Duchenne Muscular Dystrophy in August 2020, right in the middle of lockdown, it was news that devastated our family and changed the course of all our lives. Duchenne Muscular Dystrophy is the most common but most severe of the muscular dystrophies. It is progressive, degenerative and it has no cure and no treatment. Most devastatingly of all, the average life expectancy is just 26 years old as heart and lung muscles are also affected.
Like all loving families, we want a full and happy life for Michael. We came to realise very quickly, just how expensive this can be when your child has serious, complex needs. For example, the average price of a standard bike for a 5 year old is £200. The trike Michael would need costs £2,200. This is the same pattern across all things we (us included) take for granted in the daily costs of children’s activities/trips/accessibility in your own home and daily routine.
Together with Duchenne UK we continue to look forward in a positive way with many emerging treatments on the horizon. Every penny raised from your generosity will go directly to Duchenne UK, whose clear aim is to end Duchenne. They are the UK’s leading Duchenne muscular dystrophy charity, connecting scientists, industry, the NHS and families to accelerate research and bring the best care and treatments to everyone affected by DMD.
Through their commitment and co-ordinated networking approach, Michael is currently on a Gene Therapy trial and all being well the next phase of this will begin in the New Year. (We hope and pray that he receives the drug and not the placebo). This is how significantly the landscape is changing for boys like Michael and that’s what you’re helping to fund.
Thanks,
The Harveys
